We took Arina to her ped today. Poor baby is probably thinking we are a little crazy right now. She got 3 different x-rays, 8 tubes of labs, 4 shots, and a TB test. They tested her for everything from HIV to Hepatitis.
Her chest x-ray doesn't look too bad (I'm used to seeing Jax x-ray) Her heart is not enlarged, but the shape is suspicious. She needs an echo stat, but it needs to be sedated, and since we know she has airway issues, we can't sedate her until we talk to ENT first. So we were able to squeeze her into ENT next Tuesday, then we can know if we need to do general anesthesia in the OR. They will also do a hearing test when they do the echo. Trying to get this girl fine-tuned!
She also needs a swallow study, she chokes like crazy when she eats, and I'm guessing she needs thickened milk.
But she is fitting in just fine. And the boys love her "trick"!
6 months ago